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| She is such a beautiful giggle box! |
The first day we met Yana we were told that she had open heart surgery at thirteen months of age, and might need future surgery. We were also informed that she took a daily heart medication. The day before we left her birth country we received a translated copy of a cardiology report dictated November 2011. After reading this report, I knew her initial surgery didn't correct her heart defect, and the surgery was for something different than what was told to us (or at least lost through translation).
Four days after arriving home, I took Yana for an evaluation with a pediatric cardiologist. An echo cardiogram was performed and it revealed her heart defect to be "AV Canal". This defect is a combination of several abnormalities in the heart, and is present at birth. Her initial surgery didn't correct this defect, but without it she currently would be inoperable if she were still alive. We praise God that she had this initial procedure performed.
On March 1, I will take our beautiful daughter to have this defect corrected. We are so thankful for her life, and thank God for taking us to her. She would have sat in the institution and died from this defect. We are grateful to have an outstanding team of doctors, nurses, etc. to care for her during this time. I will be with her during the entire hospital stay, and Corey will stay behind to care for precious little Mila (more about her in a future post) and our other children.
No words can describe the joy in watching her blossom. She is quickly coming out of her shell, and it feels like she's always been part of our family. Please pray for her and our family during the next couple of weeks. Pray that it is God's will for her to survive the surgery, and to have a speedy recovery. Also, please pray for little Mila as I will need to be away from her 7-10 days.
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| Too Cute For Words! |
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| Double Trouble |
Praise God from Whom all blessings flow;
Praise Him, all creatures here below;
Praise Him above, ye heavenly host;
Praise Father, Son, and Holy Ghost.
God in his perfect timing! So glad that you were able to rescue Yana in time so she will be able to have surgery instead of wasting away in the orphanage. *hugs* Your girls are beautiful!!
ReplyDeleteOh, it is so good to see them home! They both look so beautiful and like they're doing well. I'm thanking God with you that you found Yana and brought her home so that she will be able to get her heart repaired.
ReplyDeleteI have loved following your journey, and thank you for allowing me to do such. I live about an hour from you, in Collegeville PA, but am very familiar with your area as my parents were originally from Gap. My youngest daughter (who is now 2) was born with the extra special chromosome and also this same heart defect. i've been through the surgery, through leaving other children (we have a total of 6), through hospital stays and hospital food. PLEASE let me know how I can be of help. Even if it's just to bring you some fruit, a meal, or something. We had our surgery at CHOP in Philadelphia, but my husband currently works at Hershey Hospital (building the new Children's hospital of all things :), so getting here there or anywhere is not a problem. If you have any questions, I would be happy to try and answer them. Praying for all of you!
ReplyDeleteksseitz@gmail.com
Hello from Reece's Rainbow! How are things going for you guys? And have you joined our After the Rainbow group yet? If not, please email me and I'll get you connected. Adoption is an amazing thing but it also brings its challenges! Sometimes it helps to talk to someone who has "been there". Please feel free to email me if you ever have questions or just need to talk.
ReplyDelete~Rachel Whitmire
Post-Adoption Care Coordinator
Reece's Rainbow Down Syndrome Adoption Ministry
www.reecesrainbow.org
Rachel@reecesrainbow.org